Friday, January 27, 2012

Getting better and better...

So, I was continuing to get weaker, but because I reduced my dose of steroids( I think, anyway) my strength is getting much better and even my tiredness isn't as bad. I was even sleeping pretty well at night, but that hasn't been happening lately.
I go back for another MRI in February, so we will see if it has been shrinking anymore. In January it had shrunk about 5%, so the dr said thats a step in the right direction. I am still going to PT and I don't know how well it's helping, but I'm still going.

Thursday, January 5, 2012

Has it been so long?

Okay, so it's only been two years or so since I've written, but I think about it quite often and think, " you should write again", so here I am :-)
So much has happened since I wrote; I was getting SOOO much better, almost like I was back to my old self(for the 2nd time) ( that people couldn't tell and I could hide it anyway) THEN one afternoon I am driving home and realize I just passed a four-wheeler and didn't know it. Not just one, but I passed two! :-S I didn't know what to do. We saw my Nuero-opthamalogist and he discovered that I could not see out of the left sides of both of my eyes. Since about mid-summer(2011) I have been learning how to "see" again. ha A lot of times I have gotten to where I just go on about my business and forget it, that's all I can do, right?
In the last couple of months, my dr has started me on taking a bigger dose of steroids, (for swelling of the brain) that turned out to work incorrectly, so they decided to slowly pull me off of them. I still have A LOT of weakness on my left side (and even right side too sometimes), but the worst part is, they caused me to have major swelling, so I am unrecognizable;, I have headaches, I don't like to go anywhere because of the swelling and I don't want them to see me like this. BUT, I have faith in God and HE will get me through this, just like he has done in the past. We are going to make it through, I just keep telling myself that.